Melissa and her mom are busy thinking about ways to raise awareness and funds for VWM, Vanishing White Matter Disease. Last week Melissa’s story was noted in the South East Center For Independent Living, newsletter. In April she will be in the national publication, Neurology Now Magazine.
February 28th is RARE DISEASE DAY. Rare diseases are typically underfunded. The research must continue. For the next two (2) weeks if you purchase Snowball’s Great Adventure 100% of the purchase will go to research. YES ~ you read correctly. 100% If you have a book already GREAT. You can purchase one for your local LIBRARY, SCHOOL or DAYCARE CENTER. There is nothing like a good book EXCEPT a GOOD CAUSE. We have a {PAYPAL} button right here on this website. Lets see if we can send some big money / mucho dinero / beaucoup d’argent to Leukodystrophy Research. As always WE NEED YOUR HELP!
